www.brainhelp.info

I think I am getting somewhere with all of this - I have an appointment with the Neuro in April, first one since the same time last year. I still have much the same symptoms as described at the beginning of this thread, perhaps with a little more stiffness and muscle cramps but otherwise no real change.

My GP gave me some Diazepam to try on the basis that if it worked, I would have an "emergency" tablet that would get me together for important meetings at work or similar.

I tried them first in November last year, starting with four tablets taken simultaneously. To my utter amazement, within 15 minutes virtually all of the symptoms magically disappeared. I was supple, stable, no shakes, able to think quickly, speak with verve and aplomb and generally felt amazing! After around 6 hours, they wore off within 10 minutes and all the symptoms returned. I felt like someone had fitted me with a strait jacket. I used the pills occasionally up to Christmas. I then went without for a few months before trying again last week. Same effect! So I obviously have a great response to Diazepam. Jo

I have no evidence for you but I do advocate the theory of inflammation. After being prescribed soluble paracetemol for pain, I found that everytime I took one, the overall symptoms of shaking, shuffling etc. improved. I mentioned this to dr and neuro but neither of them commented on the reason for this. I have now cut down on sinemet plus by one a day and ropinerole by one a day and replaced with paracetemol with good results. Good luck with your investigations along this line. Mary